Today, we had an ultra-scan at the hospital. This was our 3rd scan over the last five weeks, and Iâ€™m happy to report back with some news.
At the 1-hourÂ anatomy scan that is typically done around Week 20, they found a small issue with the babyâ€™s kidneys. They were too big â€“ or maybe, â€œdilated?â€, was what we were told by the sonographer in broken English. At first she thought it was just the left kidney, but it turned out to be both left and right.
She wanted to see us back in 8 days for a re-do ultra-scan by the scanning physician. I went to that appointment on March 16, the same day Martin had to attend to an all-day skiing “team-building event” in Sweden. So I flew solo, and Iâ€™ll admit, that appointment was rough. The doctor was thorough, warm and forthcomingâ€¦and meticulouslyÂ measured his organs while typing away on her computer. When I piped in with a question, she politely said that she would go over â€œeverythingâ€ once she was finished scanning and measuring. â€œEverything?â€ I thought.
She told me, as I wiped the gooey ultrasound-gel off of my belly, that she found two markers for down syndrome. A kidney issue and now, a â€˜bright bowel.â€™ She went on to explain that I could request a CVS or amniocentesis, if I wanted confirmation, to which I interjected that I did not want that, and that I had done a NIPT test (the Harmony-brandÂ Test) back in California during Week 10, and that my results showed â€œlow riskâ€ for trisomies of the 13th, 18th or 21stÂ chromosomes (down syndrome). She gave what soundedÂ like a small sigh of relief and said, â€œTerrific. Definitely no amnio for you, given how much youâ€™ve fought to get here! No need to risk anything.â€ I couldn’t have agreed more.
She explained that little bubâ€™s kidneys were dilated, showing signs of inflammation and some sort of obstruction in the ureters coming out of the kidneys. They measured much thicker than they should typically measure, which is a sign of inflammation and/or a blockage (Iâ€™m paraphrasing). The bright bowel was a soft marker for Cystic Fibrosis. She said they wanted to scan me again in another 3 weeks to check on the babyâ€™s kidneys and bowel.
I left the Obstetrics ward of the hospital, ambled to the main lobby and dialed Martin. He was out of breath, and approximately half-wayÂ down a mountain on his snowboard. I told him all the details and measurements that I could remember. And I downplayed my worries, â€œThese things happen â€“ Iâ€™m sure itâ€™s nothing.â€ â€œIâ€™m not worried.â€ (Big lie). Yada yada.
I was concernedÂ he might start crying when all he could muster in response was, â€œâ€¦What am I doing here in Sweden?â€
I biked home and proceeded to call my dear friend, Tanya, who I decided, I was safe enough to cry to. My anxious tears spilled out,Â and all I could really get out was that I was deeply afraid my sweet boy might have medical issues when heâ€™s born. He mightâ€¦have kidneys that arenâ€™t rightâ€¦ He mightâ€¦suffer. He might haveâ€¦frequent UTIs. Or much worse. And while these issues seemed fairly treatable, surgical or fixable, I just couldnâ€™t bear the thought of him getting a body and a host of organs that were anything less than perfect. My poor, poor baby.
Tanya was brilliant and calmed me down. I realized in that moment that the mommy-worries can start evenÂ before the Parent-title is even officially given.
I had to trust that my baby would be okay, and that the goodÂ doctors who have been treating me would be able to handle just about anything. Throughout this pregnancy, Iâ€™ve been immeasurably grateful for the terrific team of professionals who have been monitoring the little guy and me. The staff at the hospital have been so attentive, thorough and kind.
So today, three weeks since that last appointment, feeling guarded but prepared, we returned for a scan during this 25thÂ Week and were met with much better news. Little babyâ€™s right kidney was measuring perfect, the ureters were clear and fluid was passing through (showing no obstruction); the bowel was not bright, and the only minor issue left was a little dilation in his left kidney. We will be scanned at Week 32 to see how itâ€™s faring, but the sonographer says she expects it to be down to a normal level by then.
I think Martin, my sweet, shy husband, could have jumped up and hugged her.
We feel amazing right now. And so darn lucky to have seen this improvement since our last scan. Our little lovebug was active and squirming, and it was a joy to see him on the screen again,Â as it always is.
Our love for him is beyond…
We are soÂ grateful for your love and support – thank youÂ forÂ sticking with us through this pregnancy!
And now, here is the latest profile snapshot of the Little Prince, taken just today.